Lucy got her numbers yesterday and they were good!! Woo hoo! She was able to get her spinal with chemo and her peg. And that starts our next phase. She is also on dex now for 7 days off 5 and then back on 8 days. So that sucks. We hate dex! But the good news is she gets to do RI2 all at home at our affiliate. And yesterday Zach sent me her roadmap all the way to week 36! That was so exciting to see. We are currently in week 17, so when we hit week 20, we are counting down from 100! And our next phase is easy enough, as far as chemo goes. She basically gets methotrexate (MTX) every week for 4 weeks then one week of dex and vincristine, and nightly chemo. So after these three weeks we will officially be in maintenance! Just have to watch her numbers after she comes out of this 3 week period. She also only goes back to Memphis twice for the rest of 2011!! She goes in septemeber and november!
Wow jack starts 1st grade and we will finally be in a more manageable state of treatment. What a nice feeling. And we can semi-plan. Still not fully plan because sometimes after RI2, their numbers take a dive and awhile to rebound. But I'll take semi!! Lol
And there is a strong possibility she will get to go back to ballet. I hope so. She needs that interaction and loves to dance. We haven't been able to find a preschool yet that is just a couple days a week for a couple hours, so we are ordering a home school kit I think. I'm still looking.
So the issue at hand today is to get the house scrubbed down before Lucy comes home. Jack has had a sore throat and was even up in the middle of the night with it :( hoping it's just a cold. If he were to get strep, they would put the whole family on antibiotics. Odd I know. But preventative. Although lucy gets MTX next week and it's the one
Chemo that knocks strep out. So we may get lucky. And of course it could be a cold. He's had No fever and the bck of his throat looks ok for now. So we shall see.
We also got a ton more items for the silent auction and I'm super excited to see that is all coming together. And I can't remember if I posted about our telethon video yet, bit we received that in The mail and we got to watch it. The kids liked it and madee play it over and over. They asked why I was crying in it. And they would say "oh poor mommy". Such little empathizers.
I also learned this week of a family from Peoria who are in day 10 of their treatment for their daughter laci. Boy did the memories start flooding back to me. It was almost as if I could remember the exact day, all the sounds, and smells of our first days at st Jude. Her caringbridge is lacikowal if you'd like to leave words of encouragement. Her dx is the same as Lucy's. She is 4 and has a twin sister at home. How hard that must be to be separated from your birth buddy.did you know that everyday in the us 45 kids will be diagnosed with leukemia, and that's just Lucy's type. Amazing how many of those are from central Illinois. We def see most of these childhood cancers as being regional. Like I talked to a lady recently from Sarasota, fl who said in their area there are a ton of teenage kids that are diagnosed with ALL. And from Louisiana, I've seen the biggest diagnosis of brain cancers. Not that there aren't diagnosis' all over, they just seem to be concentrated regions. Amazing, huh? All down the Mississippi river. Makes You wonder.
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