Sunday, July 1, 2012

Derby love

Ok so the McLean county MissFits have been a part of Lucy's journey for awhile. They are our local roller derby team. They have volunteered their time and resources for us. Now I know why they always post derby love after a bout! We finally made one last night in honor of team Lucy. And it was amazing.
First, we walk in the door and were greeted by giving each kid custom made t-shirts. They had a picture of the yellow submarine on the front (only in Missfits colors of green/black) and the MissFits logo was in the boat. On the back of Lucy's shirt, it said Team Lucy. And on the back of jacks shirt it said "super sib". Then they showed us to our seats. Which were amazing! They had a lazy boy set out for Lucy! Lol and soft chairs for us along with signs to help us root the team on.
The music was loud and the girls were skating and warming up and it was an awesome atmosphere. Their uniforms were individualized to their stage name and it was awesome to watch them.
Before the bout, Lucy and jack went over to the Glitter Fairy's table and got a couple of amazing tattoos. And the ladies there could not have been more wonderful with Lucy. She is now an expert glitter tattoo applier!! She was even telling people how long they last and how to remove them with baby oil.
During half time, they played musical chairs while also letting Lucy sing. I was surprised as she grabbed that microphone and walked in the middle of the floor and sang the entire song of "Help". She wasn't shy at all.
We were also presented with a HUGE check. This thing was two body lengths long. The kids loved it. And the event raised $500. Which we are so grateful for. For those who came and supported us, we plan on using that money for new brakes on the van. We just bought the van last year and he since put over 40,000 miles going to Peoria every week and our MANY travels to Memphis. We have already out new tires on it and now we need brakes and rotors (sp?) and we did NOT budget that in! So this was a wonderful gift and will cover the cost of
That. Thank you!!
And one more thing before I sign off. Zach had a gentleman come up to
Zach and asked what illness Lucy had because she didn't look sick. And Zach told him leukemia. He asked how she still had all her hair, etc. and I forget that not everybody following us today haven't been with us since day one. And it was a very good and legitimate question. Zach explained
We went through our high dose chemos last year and she did lose all her hair. And now we are in maintenance so the chemos are lower doses. That's the thing with leukemia that is so "hellish" it's a 2.5 year treatment plan. And people forget sometimes what we deal with on a fail basis because Lucy longer "looks" sick. And while she is on a lower dose of chemo and doing much better, we still struggle with steroid week, low counts and low immune system, the effects of chemo, the expense of traveling each week for treatment, and missing work for it. So I want to thank that gentleman for asking that question. It helped to remind us that just because people don't look sick, doesnt mean they are well. And it helped me to remind people that leukemia is a marathon not a sprint. And right now we are on mile 11.5. And we feel very privileged to have spent some of this mile with the Missfits!
They always raise money for charities at every bout, so go out and see tem and I bet you'll have derby love too!

1 comment:

  1. Love the Misfits and especially team Lucy.

    ReplyDelete