I am finding that I am having to go back and read through my caringbridge journal to get a grasp on how to write this book thing...here is my first entry...wow! it brought back a ton of emotions....(BTW...I'm not sure why this is in all caps! LOL I don't have caps lock on, and I can't figure out how to change it...sorry about that!)
TUESDAY, DECEMBER 28, 2010 10:46 PM, CST
Today was the longest and yet most satisfying day we have had so far. Waiting and not knowing has been the worst. We now know what Lucy has for sure, her treatment plan,and are slowing accepting the fact that the "c" word is a part of our lives and Lucy forever. We try to say it as often as possible, and let Lucy and jack know that her blood is very sick with cancer bugs. I'm not sure how she feels or what her little three year old mind is thinking. I can say St. Jude is wonderful. We found out we have the BEST doctors in the WORLD! People fight for these doctors and we are fortunate to have landed with them. And of course, once anybody sees that little Beatle loving girl, they fall in love with her like we did the moment we met her. She has a feisty spirit, and we are certain if she knew what "flipping the bird" meant, she would be doing that to her cancer. I cannot believe how our lives have changed in a matter of days. Today she received three surgeries at once. She had a mediport inserted above her heart to help give her chemotherapy and do blood draws so she doesn't have to get "stuck" all the time, she had a spinal tap done to see how many cancer cells are living in her spinal fluid and near her brain, and a bone marrow sample to see the same for what is living in her bones. Good news: so far no cancer cells in her spinal fluid or near her brain. But her bone marrow is saturated. Doc says that is normal, which is why she has already had one treatment of chemo injected in her spine, and is having another put in her IV as I type. What a brave little girl. All of this and she still managed to eat her food like she was inhaling it, and yell at the nurses when they were taking her vitals. She said "I am sleeping, leave me alone!" little booger. Of course, they love her more for that. We also got our temporary housing set up today. We are going to take turns sleeping in a real bed and trying to be "normal" every other day. Our new normal is something that doesn't take long to adjust to when your child has leukemia.
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